February 1, 2015 1:14 PM MST
I thought it would be interesting to hear how all of us have adapted to our OPMD symptoms, and what we do for fun that is different and enjoyable that we didn’t do before we began having symptoms.
I’ll start, lol. I guess the things I’ll begin with are what I did before, that I can no longer do. I loved hiking in the woods. Living where we do, in the rural northern Midwest, there are lots of them. But rather than dwell on the fact that hiking is out, due to leg weakness, I am looking into buying an ATV. That will be “my legs”, and I’ll get to cover a lot more ground than I did even when I was in the best of shape!
Since walking and climbing have become issues, boating is pretty much out, as well. I have always loved to fish and there are a lot of parks that have accessible fishing piers now. Otherwise, I try to accept everytime I get an invitation from a friend with a pontoon boat, as they are lots easier to get on and off of. One of those might be in our future, too.
I use the Internet a LOT. I’ve taken up genealogy and am having fantastic results; I’ve traced my paternal line back to the 1600’s. There are some great online classes for people who are into genealogy. They provide insight on resources that beginner and intermediate genealogists may never have considered. I’m going to be taking one of these classes in the Spring; it focuses on Scottish genealogy and is offered by the U. of Dundee.
My husband and I are brushing off the chessboard. I used to play with my stepkids when they were younger, but have never played with my husband. As fierce ‘Words With Friends’ opponents, this should be interesting, lol.
For those who love gardening but can’t kneel, bend, stoop or get up off the ground; try straw bale gardening! A google search will explain it; better yet, do a search on Pinterest since a picture is worth a thousand words. It is simple, inexpensive and great for us OPMD’ers. It provides an instant raised bed, so to speak, and requires very little work or expense to get started. You can grow vegetables or flowers. We are doing it for the first time this Spring.
We have also found someone who will “rent” bees and the things you need for them from April to November. We plan on setting them up on a cheap table I picked up at an auction so that they will be easily accessible to me, and not on the ground. All we have to do is share the honey with the person we rent from, and this way we don’t have to worry about bee loss or feeding them during the cold, snowy winter months.
Go swimming! Most YMCA’s or even local high schools with pools have hydraulic lifts for people who can’t use the stairs to get in and out of the pool. Once you are in the water, you will feel as though OPMD is a figment of your imagination because you are FREE of any leg weakness limitations! It is a fantastic feeling, and even if you don’t engage in classes and just doggie paddle around for an hour, holding onto the side of the pool, its a great workout.
I owned horses all of my life and haven’t been riding in a while. But one of our local stables has a handicapped riding program. While I don’t need the program itself, being able to use their ramped mounting blocks will allow me to get on a horse and ride again. All I have to do is make sure I stay on the horse, because it would be a long walk back for both of us if I couldn’t get back up in the saddle, lol.
I’d love to hear from others and share ideas of how we can still have fun!
February 9, 2015 8:58 AM MST
I found your post on having fun so inspirational.! I plan to try and start making a list of things I’d like to start doing ! Thanks !
February 9, 2015 10:19 AM MST
Let me know what you come up with, jonana. The more ideas and inspiration we can get from one another, the better!
March 27, 2015 2:04 PM MDT
What do you look forward to with the warmer weather right around the corner?
I’ve had to give up gardening, because my legs aren’t strong enough to bend, kneel, squat or get up off the ground. But my husband and I learned about straw bale gardening this winter and we’re going to give it a try!
While it was not initially developed for people with disabilities, it turns out that is just PERFECT for us! You can even stack the bales two high if one bale isn’t high enough.
Since a picture is worth a thousand words, here is a link so you can see how it works:
and for more info —
Just google straw bale gardening; there are a zillion articles to help get you started and its CHEAP and EASY!!
March 27, 2015 2:33 PM MDT
Here in Florida when summer arrives we do indoor projects ! Have a few pots with vegetables! Then off to beach to cool off !
March 27, 2015 5:07 PM MDT
My husband and I are retiring to southern Alabama. We plan to spend summers in Wisconsin, where it rarely gets above 80 degrees and is not humid.
Best of both worlds!