My name is George I was diagnosed this year by John Hopkins in Baltimore via genetic testing. I have been having eye, swallowing, and upper leg issues for about 5 years. No one in my family has OPMD that I know of, but both of my parents are no longer living.
I joined this community in hopes of getting to know others and learning what is and can be attributed to OPMD and what can not be. I am extremely active and workout 3 day a week minimum which has kept me strong. I believe this is one reason it took so long for me to get diagnosed.