I went through this. It hit hard, then let up briefly, and then came on strong and stayed there. My movement disorder specialist gave me a four wheel walker, which has been a G-d send. It balances my legs for distance traveling, and if I get tired, I can use it as a chair. And I agree with the pain. I have found that hydrocodone helps with the pain. I get 30 325 tablets a month. I find some days that is not quite enough, after strenuous activities like laundry. However, I was warned that I should slow myself down (something I was never taught to do from 13 on), but the more you exert yourself, the higher the CK levels rise. When they rise they are muscle that is dying. It does not come back. As a stop gap, I have been put on mega doses of Testosterone. I have always been a nice, helpful afiable guy. That stuff turns me into a raging jerk. I don’t like it. I don’t like growing more hair and then having acne in it. However, I was told that would at least slow down the degeneration longer.