October 19, 2015 10:05 AM MDT
I joined this group because my Aunt has OPMD. I am a respiratory therapist and my aunt has recently begun to be constantly bothered by what she feels is excessive mucus that feels like it is choking her. She has every tool available that I know of - suction, cough/assist, nebulizers, steam, therapy vest. Most of these are not what she needs as her lungs are clear, and she is not making an excessive amount of mucus. Nonetheless, she is so focused on this issue that she spends most f her day, suctioning, rinsing, and spitting. I am trying to work with her to get her to refocus her efforts on using her current abilities so she can find some joy in her day. Is there anyone that has experienced this and has a method they use?
October 19, 2015 12:14 PM MDT
Is she a member of this forum? it might help to read how others cope and still live a good life. Also just being able to talk with people with the same problems.
I know its not much, let us know how you get on