Category Topics

Welcome

OPMD (Oculopharyngeal Muscular Dystrophy) is one of several types of muscular dystrophy (MD). MD is a group of genetic, degenerative diseases primarily affecting voluntary muscles. Although named for the muscles first affected, the eyelids (oculo) and throat (pharyngeal), OPMD also can affect facial and limb muscles. OPMD symptoms usually appear during adulthood most, often between 40 and 60 years of age. Although OPMD is a progressive disease, its progression is usually fairly slow. There is no cure for OPMD, but there are a number of therapies, surgeries, and corrective devices such as “crutch eyeglasses” that can help patients cope with this disease. There are also a number of drug therapies on the horizon that may offer relief from some symptoms.
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Symptoms & Treatments

Share with us the treatments that had helped you resolve your symptoms.
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General

Join the Oculopharyngeal Muscular Dystrophy (OPMD) discussion forum for patients, friends and families affected with OPMD.
We love to hear you stories and information about treatments, symptoms and side effects of Oculopharyngeal Muscular Dystrophy (OPMD).
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Support

Having a rough day? We're here to listen.
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Bens Friends

Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.
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