Living with OPMD

General Discussion


Topic Replies Activity
Community Help With Summer Fund Raiser For New Communities

Can you help us out? We have set a goal of creating 10 new communities over the next year. It costs $1500.00 to create, set up, and take online a new community. We trying something new for this ambitious project. A group…

2 May 29, 2019
About the General Discussion category 2 May 21, 2016
What do you do for fun, in spite of OPMD? 6 June 10, 2019
Can You Climb Stairs? 4 June 10, 2019
How Were you Diagnosed 5 June 10, 2019
Interesting Facts About The Glacier Park Hiking/Fund Raiser Team 1 June 10, 2019
Vision Problems 5 May 21, 2019
Need Ideas! 1 May 14, 2019
Leg weakness and pain, advice 5 April 8, 2019
Disability Insurance 4 April 8, 2019
Upcoming Event 1 March 31, 2019
Balance problems 4 March 21, 2019
Orphan Drug Designation from the FDA for Benitec OPMD Treatment 4 March 21, 2019
Our apologies 4 September 23, 2018
Things You Miss Due to OPMD 2 September 2, 2018
Perception Experiment worked 10 July 29, 2018
OPMD worldwide MAP 2 July 9, 2018
I'm new here: What supplements and nutritionals do you take? 5 July 9, 2018
Did You Know? BioBlast's New Drug, Cabaletta, is Made From Sugar 6 July 8, 2018
Painful upper legs 2 July 8, 2018
Are You PABPN 1 Positive or Negative 2 July 8, 2018
Patient Clinical Trial- Swallow study 2017 2 July 8, 2018
Traveling With OPMD 8 July 8, 2018
What would you like others to know about OPMD? 3 July 8, 2018
Helpful Video from Emory about OPMD 3 July 7, 2018
Has anyone considered a mobility dog and had a successful outcome? 4 July 7, 2018
How to help my aunt accept her OPMD 2 July 7, 2018
Introducing our newest Community 1 February 5, 2018
***Holiday Greetings from All of us here at Ben’s Friends*** 2 December 24, 2017
Bentiec Biopharma news May 2017 1 May 31, 2017