Living with Oculopharyngeal Muscular Dystrophy (OPMD) - Patient Support Group

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New User Help

Are you a new user?
Don’t worry we will guide you through the following videos.
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Welcome

OPMD (Oculopharyngeal Muscular Dystrophy) is one of several types of muscular dystrophy (MD). MD is a group of genetic, degenerative diseases primarily affecting voluntary muscles. Although named for the muscles first affected, the eyelids (oculo) and throat (pharyngeal), OPMD also can affect facial and limb muscles. OPMD symptoms usually appear during adulthood most, often between 40 and 60 years of age. Although OPMD is a progressive disease, its progression is usually fairly slow. There is no cure for OPMD, but there are a number of therapies, surgeries, and corrective devices such as “crutch eyeglasses” that can help patients cope with this disease. There are also a number of drug therapies on the horizon that may offer relief from some symptoms.
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General Discussion

Join the Oculopharyngeal Muscular Dystrophy (OPMD) discussion forum for patients, friends and families affected with OPMD.
We love to hear you stories and information about treatments, symptoms and side effects of Oculopharyngeal Muscular Dystrophy (OPMD).
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Newbies Guide to OPMD

Included in this category are resources about Oculopharyngeal Muscular Dystrophy (OPMD) written by members by members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information
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New Member Introductions

New members, start your experience here. Introduce yourself and share your story. Let us welcome you
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News

News From Bens Friends
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Bens Friends

Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.
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Events

Events of interest to OPMD Patients and our Communities. Just email to have the staff add your event.
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Complimentary Therapies

Welcome to Complementary Therapies! This is the place to discuss the array of complementary healing modalities that many of us rely on to help us live healthier lives. Whether you're looking to do more to promote your own health while undergoing medical treatment, or are waiting to get medical treatment and are looking to do what you can to feel better in the meantime, this is the place to post your questions and information. We will discuss everything from acupuncture and chiropractic to nourishing our bodies, minds, and spirits. This is the place to discuss healing modalities that can complement medical treatment
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Emotional Support

Having a rough day? We're here to listen.
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Prayer and Healing Energy Requests

A place to request prayers and healing energy for yourself or others, from our community of caring, supportive friends, for any issue(s) we deal with.
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Site Feedback

Discussion about this site, its organization, how it works, and how we can improve it.
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FAQ

FAQ about the OPMD Community
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Bens Friends Apps for mobile Devices

Bens Friends Apps for mobile Devices
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